Sunday, June 20, 2010

today, she asked to walk

video

so, baba made that happen :O)

(i should clarify for those that commented, there was a time we believed
with bracing from hip to feet, special walkers, etc that she may walk.
after 3 P.T. evals and months in therapy, it was determined
that in fact she won't walk, due to a multitude of factors
with her legs/hips/feet. we are working on creating a "stander" for her
that she can actually kneel on - with back support- so she
can function at her actual height- it's a huge work in progress. she
has trouble standing even in a stander- the contractures in
her feet are significant. what i do know is- walking or not-
there is nothing that will stop this brilliant, vibrant little girl
i get to call my daughter- she's got a wealth of determination
and just the right attitude!).

41 comments:

  1. Oh, wow. I just love her spirit... she is infectious.

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  2. Oh, man! I was totally willing that foot to move, for her to push off with the left, etc. When I realized I was tensing and straining my body, as I watched...I realized how much I love watching kids (any kid, all kids) excel, succeed, learn and grow. It is all such a miracle. Good job, Miss Ellis...!

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  3. Oh Boy! Look how strong she is getting......even her crawling is stronger looking.....
    Happy father's Day Garth!!!
    From Lindsi: I hope to see you soon and I miss you so much.

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  4. What a father's day...what a baba...good stuff.

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  5. YEA... LOVE IT.
    She is AMAZING..

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  6. My heart is a puddle on the floor.
    She's a star.

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  7. What a trooper. There's NOTHING she won't overcome! Happy Father's to you-know-who (not using names just as you requested).

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  8. 'Freedom Master' indeed! What a wonderful gift for a father to give his daughter: the belief that anything is possible, and that he will always be there to hold her as much as she needs. What a beautiful Father's Day.

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  9. Hi,
    thanks a lot for the acces at your private garden...
    Congratulation to ellis for this steps, the first of a lot of...
    I just sent you an invitation for my private blog, i don't know if you read french but i edit a lot of pictures of my little Victoire.

    Very happy to be abble to read you soon.
    friendly from south France where there is a lot of water in our town :Draguignan, with house an cars broken...

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  10. Wow...just wow. I LOVE that she wants to do it - that she believes she can do it - and that her baba helped her do it. Tell the Freedom Master Happy Father's Day from H and me. And give the wonderkid a hug from us.

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  11. Great video! She is awesome with the heart of a tiger! Happy Baba's day!!!

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  12. Amazing! What a strong, strong girl.

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  13. look at her go. what an inspiration!! :)

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  14. LOVE HER!!!!!!
    Happy Father's Day, indeed! :)

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  15. awwww she is so cool, she is seriously gonna make alot of things happen one day!

    cheers from cisca in amsterdam

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  16. Awesome. Love the look of achievement on her face. :D

    Hey..... look! I commented!!! ;)

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  17. My heart skipped a beat! What a precious memory to have of the first Father's Day together. Your precious daughter is a Super Star! In such a short time she has so much trust in both of you. Great job!!
    Ellen

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  18. OH !! She will walk that's for sure!! l

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  19. I am afraid for anyone who gets in her way. I love how proud she is of herself....ANOTHER wonderful quality to take her through life.

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  20. She is such a happy, beautiful girl! I love that spirit!

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  21. Such a beatiful girl. She has an amazing spirit.

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  22. She is just SO darn cute! Do you mind if I ask: if she will eventually be able to "kneel" on her stander, how will she be full height? Either way, weight bearing is weight bearing and it's good for her bones! If none of my business, I fully understand...but the OT in me gets curious, LOL!

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  23. Precious, strong girl. You are right - walking or not, she will is amazing.

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  24. sharon-
    to answer your question. we are modifying her stander that we have tried to use at P.T. but it isn't working because of the hip dislocations, and how contracted her feet are (when she is in the stander, her left foot flexes up almost to a 90 degree angle, so she's putting all her weight on to her ankle, and her right foot turns in so she's standing on the lateral edge of it). we decided to modify the stander into a kneeler, the kneeling surface will be a bit higher (where her knees really are) with a cushion, so kneeling, she'll be at her actual height.

    hope that makes sense.

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  25. Nothing like a few tears at 8 in the AM. That was wonderful. I adore her smile. She rocks!

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  26. LOOK AT THAT SMILE!! She steals your heart!!
    Krista D

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  27. Smiling big here...
    She is just precious and amazing and wonderful!
    The world is hers.

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  28. Great video! She's such an amazing kid...what a sweetheart!

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  29. I love her determined little spirit! She is just beautiful!

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  30. K-

    Got it. In other words, she'll be standing/kneeling on her knees, in "high heels", right? ;-)

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  31. Beautiful- she looks SO happy! And so wonderfully determined! Thanks for the great smiles this morning!

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  32. What an amazing child! She makes my heart smile!

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  33. This adorable little girl an angel of courage. She is wonderful and I am full of kisses.

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  34. I pray that she will keep that cheerfulness and strong spirit throughout her life.

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